Trisomy 18 Foundation

"Our investment in Convio was key to broadening our online efforts and building critical capacity to serve our growing national organization. We needed a better understanding of our constituents in order to connect and engage with them on a regular basis. Our audience is now empowered to find the information they need in a phased way, while our staff can easily manage many more initiatives to serve our mission."

- Victoria J. Miller, founder and executive director, Trisomy 18 Foundation

About Trisomy 18 Foundation

Trisomy 18 (or Edwards Syndrome) is a serious genetic condition that occurs in approximately one in every 3,000 live births. The Foundation's mission is to guide the search for a cure and treatments, to educate and support medical professionals, and to create a caring worldwide community for affected families. The Foundation envisions a world where Trisomy 18 is a preventable and treatable condition and all parents have access to compassionate, knowledgeable care that respects the humanity of their child diagnosed with Trisomy 18.

The Challenge The Solution Results
  • A small staff with limited budget and an unwieldy Web presence needed to serve audiences with diverse interests
  • Sought a cost-effective way to provide patient education, resources and support, as well as interactions with other peer parents, in a 24/7 Web-based environment
  • Wanted to send email communications to constituents, but lacked appropriate technology
  • Changes to Web site required HTML expertise
  • Used PayPal® as the sole means of accepting donations online, which limited donors' payment options
  • Lacked ability to engage and communicate with readers of the organization's online forum boards
  • Chose Convio Fundraising, Email Marketing, Web Content Management, Ecommerce and Tributes
  • Introduced the various Convio tools through a phased approach to support the organization's growth
  • Makes frequent updates to Web site, without having to use HTML coding
  • Leverages conditional content to customize messaging based on fields in constituents' individual profiles
  • Solution supports the fast-growing organization, its growing online initiatives, and expanding audience
  • Empowers constituents to create Web sites that share personal stories with friends, family and the community as part of the grieving and healing process
  • Increased online monthly donations from $2,000 to $10,000, with total donations more than tripling in one year
  • Segmentation capabilities have helped define and build ecosystems of constituents, and meet their diverse needs without adding personnel to the organization
  • Doubled email file in just over 12 months, with an average of 400 new registrants each month
  • Unique Web site visitors have increased from 8,000 to 20,000+ in one year, with monthly hits exceeding 1 million
  • Freed up staff resources to pursue other organizational goals

Convio solutions used by Trisomy 18 Foundation

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Trisomy 18 Foundation - Case in Point

Visit Trisomy 18 Foundation's Web site at www.trisomy18.org

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